Baby born with adult-sized tongue has normal smile after second surgery


A South Dakota baby born with a larger-than-normal tongue is able to smile after successfully completing surgery.

>> Read more trending stories  

Now 16-month-old Paisley Morrison-Johnson was born with Beckwith-Wiedemann syndrome, a condition in which affected infants grow abnormally large parts of the body. In Paisley's case, her tongue was the size of an adult's when she was born. She also had enlarged organs, CBS News reported.

"It was really emotional. It's still emotional. I never got to touch her. I got to see her, but I was being stitched up and they just wheeled an omni bed over to me and there I saw her, you know, just tubes and cords," Paisley's mother, Madison Kienow, told CBS.

Posted by Madison Kienow on Wednesday, July 29, 2015

That day, Paisley was flown 200 miles away to Sanford Children's Hospital in Sioux Falls, South Dakota. She was admitted to the neonatal intensive care unit, where she was monitored by specialists, who identified her condition. Her mother joined her the next day.

"I was blaming it on me. What did I do during my pregnancy that was wrong?" Kienow recalled asking herself. "But it was nothing that I could have prevented. It was just what she was born with. Jesus wanted me to have something a little extra special."

Three months later, Paisley underwent her first tongue-reduction surgery. It grew back. The infant underwent her second surgery about three months ago. She had more than six inches of muscle removed.

Today, Paisley is learning to live with her "baby tongue," and her mother said she is "one of the most facial-expressed babies ever."

"She is one determined little girl. She has a lot of fight in her," Kienow told CBS.

The tongue, a muscular organ, could grow back, but Paisley's future is bright. 

Experts say most children with Beckwith-Wiedmann syndrome see the symptoms slow down as they age. Most people with Beckwith-Wiedemann syndrome don't have serious medical problems associated with the condition, and their life expectancy is usually normal, according to the U.S. National Library of Medicine.

Posted by Madison Kienow on Saturday, September 24, 2016


Reader Comments ...


Next Up in Nation & World

Adobe to finally kick Flash to the curb
Adobe to finally kick Flash to the curb

Are you a frequent user of Adobe’s Flash? If so, it will be time to say goodbye soon, because the company announced that it will get rid of the program by the end of 2020.  The corporation broke the news this week, revealing that its partners - Apple Inc, Microsoft Corp, Alphabet Inc's Google, Facebook Inc and Mozilla Corporation - will...
71-year-old woman takes dog to national park to scatter husband's ashes, ends up stranded for 6 days 
71-year-old woman takes dog to national park to scatter husband's ashes, ends up stranded for 6 days 

After six days of being stranded in Olympic National Park, 71-year-old Sajean Geer and her Chihuahua-terrier mix dog, Yoda, were rescued by a Coast Guard aircrew.  >> Read more trending news Rescuers found the pair around 7:15 p.m. Sunday. Both were fatigued and thirsty, but otherwise reported to be in good health. Geer was taken to the...
NEW: Man wearing flip-flops slips, falls 100 feet to his death
NEW: Man wearing flip-flops slips, falls 100 feet to his death

A man slipped and fell to his death while taking a picture of a waterfall Saturday, authorities said. Robert Durbin, of Montana, was at the Montana’s Glacier National Park when he “lost his footing,” according to the Missoulian. Durbin fell into a creek before being sent over a cliff and falling approximately 100...
Anderson Cooper on Kathy Griffin: ‘I think she’ll bounce back’
Anderson Cooper on Kathy Griffin: ‘I think she’ll bounce back’

Things between Kathy Griffin and Anderson Cooper are going well, according to the CNN night-side host.  >> Read more trending news  Cooper recently sat down with Andy Cohen and opened up about his friendship with his former CNN New Year’s Eve co-host after her recent scandal involving a photo of a beheaded President Donald Trump...
VIDEO: Divorcée destroys ex’s $1M violin collection during breakup
VIDEO: Divorcée destroys ex’s $1M violin collection during breakup

Divorces are messy and things get ruined. But the casualties from this one in Japan is catching everyone’s attention.  A woman was arrested and charged Tuesday with destroying her ex’s $1 million violin collection, news reports state. Midori Kawamiya, 34, was arrested on suspicion of damaging 54 violins and 70 bows during the breakup...
More Stories