You have reached your limit of free articles this month.

Enjoy unlimited access to myPalmBeachPost.com

Starting at just 99¢ for 8 weeks.

GREAT REASONS TO SUBSCRIBE TODAY!

  • IN-DEPTH REPORTING
  • INTERACTIVE STORYTELLING
  • NEW TOPICS & COVERAGE
  • ePAPER
X

You have read of premium articles.

Get unlimited access to all of our breaking news, in-depth coverage and bonus content- exclusively for subscribers. Starting at just 99¢ for 8 weeks

X

Welcome to myPalmBeachPost.com

This subscriber-only site gives you exclusive access to breaking news, in-depth coverage, exclusive interactives and bonus content.

You can read free articles of your choice a month that are only available on myPalmBeachPost.com.

Baby born with adult-sized tongue has normal smile after second surgery


A South Dakota baby born with a larger-than-normal tongue is able to smile after successfully completing surgery.

>> Read more trending stories  

Now 16-month-old Paisley Morrison-Johnson was born with Beckwith-Wiedemann syndrome, a condition in which affected infants grow abnormally large parts of the body. In Paisley's case, her tongue was the size of an adult's when she was born. She also had enlarged organs, CBS News reported.

"It was really emotional. It's still emotional. I never got to touch her. I got to see her, but I was being stitched up and they just wheeled an omni bed over to me and there I saw her, you know, just tubes and cords," Paisley's mother, Madison Kienow, told CBS.

Posted by Madison Kienow on Wednesday, July 29, 2015

That day, Paisley was flown 200 miles away to Sanford Children's Hospital in Sioux Falls, South Dakota. She was admitted to the neonatal intensive care unit, where she was monitored by specialists, who identified her condition. Her mother joined her the next day.

"I was blaming it on me. What did I do during my pregnancy that was wrong?" Kienow recalled asking herself. "But it was nothing that I could have prevented. It was just what she was born with. Jesus wanted me to have something a little extra special."

Three months later, Paisley underwent her first tongue-reduction surgery. It grew back. The infant underwent her second surgery about three months ago. She had more than six inches of muscle removed.

Today, Paisley is learning to live with her "baby tongue," and her mother said she is "one of the most facial-expressed babies ever."

"She is one determined little girl. She has a lot of fight in her," Kienow told CBS.

The tongue, a muscular organ, could grow back, but Paisley's future is bright. 

Experts say most children with Beckwith-Wiedmann syndrome see the symptoms slow down as they age. Most people with Beckwith-Wiedemann syndrome don't have serious medical problems associated with the condition, and their life expectancy is usually normal, according to the U.S. National Library of Medicine.

Posted by Madison Kienow on Saturday, September 24, 2016


Reader Comments ...


Next Up in Nation & World

Firefighters teach honest 5-year-old an important lesson in good karma
Firefighters teach honest 5-year-old an important lesson in good karma

A fire department is teaching a 5-year-old boy that good things happen to people who do the right thing. Earlier this year, Dave Starzec lost his wallet. He was finishing a trip to a Lowe's hardware store in Greer, S.C., when he set his alligator-skin wallet down on the bumper of his car. Inside the wallet was $2,000. “I was carrying my...
Teacher allegedly had sex with 4 students, including 2 at same time
Teacher allegedly had sex with 4 students, including 2 at same time

A Texas educator is unlikely to see a classroom any time soon after she reportedly admitted to having sex with four students. According to KTRE, Heather Lee Robertson, 38, was arrested Saturday and charged with four counts of “improper relationship between educator and student.” An affidavit shows that the investigation began on April...
FaceApp transforms selfies via neural network
FaceApp transforms selfies via neural network

For better or for worse, a lot of us have gotten used to selfie face filters in apps such as Snapchat and Facebook Messenger that can add silly extremes to our photos and videos, such as sticking a unicorn horn on our head or turning us into superheroes. But FaceApp, an increasingly popular app that debuted in February for iOS and Android, is...
Social Security: Help a loved one by becoming a representative payee
Social Security: Help a loved one by becoming a representative payee

According to the Census Bureau, there are nearly 57 million people living with disabilities in the United States. Thirty percent of American adults help provide care for a sick or disabled family member. Caregivers provide physical and emotional support for the people in their care. It’s a demanding job with its stresses and rewards, but it can...
Woman recalls breathtaking water rescue caught on video
Woman recalls breathtaking water rescue caught on video

A woman is speaking out after she was involved in a hydroplaning accident in Broken Arrow, Oklahoma, that ended with her car fully underwater. Video released Friday showed good Samaritans rescuing the woman trapped upside-down inside the submerged vehicle. Now, she says she is doing well, but her car did fill up all the way with water, so she&rsquo...
More Stories