Who she is: Catherine Abbott-Horowitz, a former actress and model, founded the nonprofit, Catherine’s Hope for A Cure, several years ago to raise awareness and research money to fight Batten disease. She’s hosting a golf tournament Saturday with her friend, advertising guru Donny Deutsch (from “The Today Show” and CNN). So far, the organization has raised nearly $100,000.
Batten disease, or neuronal ceroid lipofucsinosis (NCL) disorder, is a hereditary progressive, fatal, neurodegenerative disorder that usually strikes children. Abbott-Horowitz and her father, who passed away from it in 2009, have the adult onset, dominant form of the disease. It is characterized by seizures and loss of muscle coordination, and, in Abbott-Horowitz’s case, debilitating migraines and painful muscle spasms.
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